Resources

True health is more than just vital signs. For people with IDD, well-being encompasses a holistic set of outcomes that matter most to them as individuals. This consensus framework defines the 43 National Goals, nine Health Outcome Domains, and 29 Priority Elements that healthcare leaders must focus on, representing the perspectives of the IDD community.

People with IDD need more time with their doctors but don’t get it. Mai Pham co-authors this paper with Robert A. Berenson and Adele Shartzer of the Urban Institute on ensuring clinicians have adequate time to provide high-quality care to people with complex needs, published in Health Affairs Scholar.

Mai Pham chaired a committee for The National Academy of Medicine that recently released this report, which compares the need for urgent action on declining health in America to the urgent need for climate action. It calls for government to set regulatory and financial incentives that value a community’s health.

Accurately predicting how much and the kinds of services a group of people will need is a crucial aspect of health care payment because it helps allocate more resources to providers who care for people with IDD and complex needs.